Advocacy Specialist, Policy & Advocacy

12 Dec, 2018


Advocacy Specialist, Policy & Advocacy

Cystic Fibrosis Foundation
Bethesda, MD


The Cystic Fibrosis Foundation seeks an Advocacy Specialist to join our Policy and Advocacy department in Bethesda, MD.

Works in close collaboration with the Access Policy team and other Policy and Advocacy Department members to execute on-the-ground campaign activities including management of volunteers, local coalitions of representatives from national stakeholders, planning and execution of events, and coordinating earned media opportunities. In partnership with State Policy Specialists and across departments, Advocacy Specialists help develop strategy, tactics and approach to projects both federal and state policy advocacy activities, assisting in the development and distribution of communications materials, and track key programmatic metrics. Advocacy Specialists must rely on their experience and judgment to plan and accomplish assigned tasks and goals.


The Cystic Fibrosis Foundation (CFF) and its employees embrace their commitment to its core values.  These core values are the pillars on which CFF stand and will continue to sustain us as we move forward.

  • Keep sight of what really matters:  Our decisions are based on what is best for people with cystic fibrosis and their families.
  • Aspire for excellence in all we do:  We take pride in our work. We are committed to continuous learning and improvement.
  • Stronger together:  We collaborate and work together so that we can learn more and achieve more.
  • Innovate with courage:  We embrace challenges. We reach beyond boundaries in pursuit of our vision.
  • Care about our people:  We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.
Essential Functions: 
• Works to build grassroots, volunteer capacity to strengthen Foundation policy advocacy efforts; acts as CF community organizer
• Act as the conduit of information between policy team, communications and chapter staff and volunteers
• Provides logistical support including but not limited to meeting scheduling, agenda development, special event preparation, training development, creation of materials, and conducting follow-up with stakeholders.
• Establishes relationships (internally and externally) and coordinates with key partners, including, but not limited to local representatives of national patients’ organizations
• Works to identify local organizations to engage in advocacy efforts
• Collaborates with chapter staff to execute events that support volunteer engagement, managements and capacity building initiatives
• Applies content knowledge to projects and communicates content to relevant internal and external partners.
• Execute grassroots advocacy events including, but not limited to State Advocacy Days; supporting the development of policy agenda, identifying appropriate legislative and other targets
• Recommend appropriate tactics necessary to advance Foundation position in states (i.e. campaigns; op-eds; in-person meetings)
• Ensure proper execution of each tactical approach
• Support coordinating with local consultants and providing event support as necessary.
• Monitoring progress and recommends adjusting strategies as needed
• Other duties as assigned.
Additional Responsibilities: 
• Database management and analysis
• Provide input on process, design and implementation of cross functional and
• A minimum of 3 years of experience in fast-paced work environment and strong interested in health policy preferred.
• Prior experience (including internship) in public policy, state legislature or political campaign highly desirable.
• Requires excellent writing, verbal and interpersonal skills.
• Individual should be highly analytical, organized, conscientious, resourceful and adaptable.
• Team player with positive attitude and strong work ethic.
• Must be proficient in Microsoft Office suite, experience with Adobe and/or Photoshop suites a plus.
• NGP VAN, Phone2Action or similar mobilization software experience preferable
• Bachelor’s degree, preferably with a background in political science, communications, public policy, or biological science
Learn more here

Job posted: 2018-12-12