Director of Public Policy

03 Feb, 2021


Director of Public Policy

Family Voices
Washington, DC


Family Voices is a national, family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. Family Voices focuses on achieving social justice and health equity by ensuring that families are at the center of children’s healthcare. We connect a network of 64 family-led organizations across the States, territories and tribal groups that provide support to families of CYSHCN and help them navigate health care systems. We promote equitable partnerships with families at all levels of health care including individual and policy decision-making levels, to improve health care services and policies for children with special health care needs and their families.

Reports to: 

Executive Director


Plans, implements, and coordinates federal legislative and regulatory activities in support of Family Voices’ public-policy priorities by representing the organization before Congress and the administration, building relationships and communicating with key congressional offices, collaborating with other stakeholder organizations, and engaging our national grassroots network of family leaders in educating their Congressional delegations about family priorities within their states and jurisdictions.

Position Status: 

Hours, salary, and employment status to be determined.

Work Location:

The Director will work remotely from home or elsewhere but must be based in the metropolitan DC area to attend coalition, congressional, and administration meetings.

Responsibilities and Duties

Manages Public Policy Priorities

·      Monitors, analyzes, and responds to legislative and regulatory proposals of importance to CYSHCN and their families, including Medicaid, the Affordable Care Act, and other federal programs.

·      Serves as the registered lobbyist for Family Voices, building relationships with and communicating directly with congressional staffers, administration officials, and other advocates about issues of importance to CYSHCN and their families.

·      Takes the lead in direct and grassroots lobbying to ensure the continuation of funding for Family-to-Family Health Information Centers (federally funded information and referral centers that help families of CYSHCN to navigate the health care system; currently authorized and funded through FY 2024).

·      Develops legislative and regulatory advocacy materials such as testimony, fact sheets, talking points, letters, and public statements.

·      Collaborates with other organizations and coalitions working on child and family health and disability issues.

·      Establishes and develops partnerships with other organizations sharing our priorities.

·      Advises and consults with the Board of Directors and its Policy Committee in developing Family Voices’ policy priorities, and creates and implements clear plans to achieve these priorities.

·      Plans and facilitates monthly calls of the Board of Directors’ Policy Committee.

·      Accompanies Executive Director, other staff, Board members and constituents on visits with or calls to congressional staff or administration officials.

·      Registers as a lobbyist for Family Voices and files quarterly lobbying and contributions disclosure forms with Congress as required by the Lobbying Disclosure Act.

Engages Our National Network in Public Policy Activities

·      Writes a weekly update on legislative and regulatory issues for dissemination to the Family Voices network and others.

·      Prepares grassroots alerts and advocacy materials for the Family Voices network, webpage, and social media.

·      Facilitates communication about specific issues between family leaders from our national network and key Members of Congress.

·      Works to enhance the advocacy capacity of Family Voices Affiliate Organizations around the country.

·      Provides professional development for family leaders in preparation for congressional visits and meetings with congressional staff; accompanies family leaders on lobbying visits.

·      Provides technical assistance to the Family Voices network about federal legislative or regulatory processes.

·      Seeks information from the Family Voices network about matters related to federal policy development, such as challenges with Medicaid programs and the impact of the pandemic on children and families.

Serves as a Resource to Congress, Government Agencies, and Other Organizations

·      Responds to inquiries from congressional staff, administration officials, and other organizations about issues related to CYSHCN and their families or about Family Voices’ positions on specific proposals or policies.

·      Prepares comments on proposed regulations, responds to formal Requests for Information and informal inquiries from Congress, congressional staff, or federal agencies about issues related to CYSHCN and their families.

·      Identifies family leaders to nominate for federal boards or commissions seeking a family representative.

Qualifications and Skills

·      Bachelor’s degree required.  Law degree or Master’s in public health, public policy, or related field preferred. Minimum of three years of relevant work experience on Capitol Hill or in a similar federal government-affairs position.

·      Excellent written and oral communications skills.

·      Direct and grassroots lobbying skills.

·      Knowledge about federal health care programs, particularly Medicaid and the Affordable Care Act.

·      Familiarity with Congress (particularly health-related committees) and the Department of Health and Human Services.

·      Ability to quickly gather information and data about legislation, regulations, government programs, insurance coverage, CYSHCN, and other topics as needed.

·      Research skills especially related to health care legislation and advocacy, including,, Federal Register, and other databases.

·      Ability to work with policy makers and staff of all ideologies.

·      Ability to work both independently and in collaboration with others.

·      Commitment to the mission and goals of Family Voices.

·      Registration as a lobbyist under the Lobbying Disclosure Act and timely filing of required disclosure forms.

Other desired qualifications:

·      Familiarity with state/jurisdiction level policy-making processes, particularly Medicaid policies and implementation.

·      Preference will be given to applicants from diverse cultural backgrounds and those with lived experience as a family member of individuals with special health care needs.


To be determined.

How to Apply 

Qualified Applicants should submit a well-written cover letter and resume summarizing relevant qualifications to:

Job posted: 2021-02-03