Director, Regulatory Affairs #NAT3853

12 Mar, 2021


Director, Regulatory Affairs #NAT3853

National MS Society
Washington, DC

Potential Work Locations

Washington, District Of Columbia

Position Summary

The National Multiple Sclerosis Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS. To fulfill this mission, the Society funds cutting-edge research, drives change through advocacy, facilitates professional education, collaborates with MS organizations around the world, and provides programs and services designed to help people with MS and their families move their lives forward.  We partner with volunteers to accomplish our work. Staff members engage volunteers through effective and timely communications, facilitating meaningful opportunities, and continually seeking and providing feedback for reciprocal growth and learning.

The Director of Regulatory Affairs will work with the AVP of Federal Government Relations and the Senior Director of Health Policy to identify opportunities and strategies with the federal agencies. This position will help provide leadership and education on the Society’s policy priorities to other functional area and work to identify emerging issues that can be addressed via public policy in the regulatory arena. This position is responsible for developing and building relationships with regulatory officials and within coalitions to drive key policy messages, build advocacy strategies and advance Society policy priorities.

Essential Function/Responsibility:

  1. Policy & Regulatory Responsibilities (40% of time)
  • Lead the implementation of the advocacy strategies within the federal agencies to drive Society policy priorities.
  • Monitor, track initiatives and relevant agency activities that impact Society priorities within the federal health agencies
  • Develop relationships with key policy staff within federal agencies including but not limited to the Department of Health and Human Services, Department of Transportation and Department of Labor.
  • Lobby federal agency officials on Society policy priority issues.
  • Draft testimony, regulatory comment letters, talking points, memos, advisory committee nomination letters for government or partner organization committees, fact sheets, and other materials as necessary.
  • Serves on and within leadership positions within relevant coalitions and both internal and external work teams on issues relating to federal regulatory actions.
  • Work with advocacy policy team to ensure coordination of policy messaging across state/federal regulatory bodies.
  • Writes policy articles and other communications as needed.
  • Provide strategic guidance to advance policies.
  1. Policy Identification & Development (20% of time)
  • Works closely with federal affairs team to develop policy priorities, strategies, and within the U.S. federal agencies on issues including accessing quality healthcare, affordable medications, long-term services and supports (including family caregiving), durable medical equipment, Social Security disability benefits and disability rights.
  • Reviews periodicals, the Federal Register, congressional committee activities, Administration activities, grant opportunities, advisory committee opportunities, and other items of relevance daily.
  • Develop and update resource materials and training needs around the Society’s policy priorities
  • As part of the advocacy team, analyze federal regulatory activity for impact on Society priority issues.
  1. Strategic Engagement and Communications (20% of time)
  • Implement plan to Identify, recruit and engage volunteer activists/ activist stories in written and regulatory policy work.
  • Provide policy updates to different audiences across the organization.
  • Ensure relevant policy information is on the website.
  • Ensure all volunteer engagement information is accurate in all Society technology resources.
  • Engage with staff across the Society to increase understanding and best support regulatory issues. Including but not limited to: MS Navigators, healthcare access staff, advocacy staff and research staff.
  1. Team Responsibility – (10% of time)
  • Contribute in team meetings; provide support and feedback to colleagues.
  • Utilize matrix management techniques to foster relationships with Society staff.
  • Other duties as assigned.

The National MS Society is committed to building a diverse and inclusive workforce.  We strive to create a workforce that reflects the communities we serve and where everyone feels empowered to bring their authentic selves to work.  We need you and your unique talents and perspectives to help us write the last chapter on MS.

Learn more here

Job posted: 2021-03-12