Lead, US Public Affairs & Patient Advocacy, Rare Diseases

11 Mar, 2021


Lead, US Public Affairs & Patient Advocacy, Rare Diseases

Bridgewater, NJ/Swiftwater, PA/Cambridge, MA


Reporting to Head of US Public Affairs & Patient Advocacy, Rare Diseases, the Lead, US Public Affairs & Patient Advocacy will join the US Public Affairs & Patient Advocacy team as part of the PA & PA Rare Diseases group. The role is responsible for developing an understanding of the patient communities and their unmet needs, including creating, socializing, and leading the implementation of the US patient advocacy strategy for ADPKD, GM2/GM1, Gaucher Disease Type 3, and ASMD.

The Lead, US Public Affairs & Patient Advocacy will create and oversee strategic engagements with key patient advocacy groups and thought leaders in relevant communities. They will participate on internal cross-functional workstreams, driving mutual goals to incorporate the patient voice into the R&D/clinical process, ensure affordable and sustainable access, improve health, and partner for key initiatives. This role ensures that the real-world patient experience and perspective on unmet needs will inform transversal efforts to prepare for launch, including accelerating the time to diagnosis, improving disease education and resources, educating the community on treatment advances, and providing support to improve health outcomes.

Job Duties & Responsibilities

  • Lead development and implementation of patient advocacy strategy and engagement for ADPKD, GM2/GM1, Gaucher Disease Type 3, ASMD patient communities, including activities such as landscape assessments, educational programs, disease awareness initiatives, advisory boards, clinical trial awareness, and policy improvements.

  • Ensure patient-centered drug development: gather patient perspectives, increase trial participation and awareness, and ensure strong internal and external communication with stakeholders about development programs

  • Identify and engage with advocacy groups and coalitions in relevant disease areas: build relationships, foster connections, gather patient perspectives

  • Create and execute strategic engagement plans in support of company goals and community needs, for individual diseases as well as to be part of an overarching US rare disease advocacy strategy

  • Drive presence at relevant advocacy organization events and meetings. Share key takeaways with relevant internal partners. Ensure that Sanofi Genzyme leadership position is evident to external community.

  • Participate in cross-functional teams and workstreams, as well as disease-specific working groups, ensuring patient perspective is shared and represented

  • In collaboration with other Public Affairs & Patient Advocacy colleagues, support the advancement of policy positions that embrace sustainable access to appropriate disease management, appreciation of innovation, and the importance of optimal therapy

  • Serve as an internal resource to critical internal partners in Commercial, Value & Access, Policy, Research & Development, Government Affairs, Corporate Communications, Global Public Affairs & Patient Advocacy, Regulatory, Legal and Compliance

  • Ensure full compliance with industry regulations and internal policies and procedures

Essential Qualifications

  • A minimum of a Bachelor’s degree is required for this position

  • A minimum of with 5 years of industry relevant patient advocacy experience is required

  • Experience engaging leaders of patient advocacy organizations is required.

  • Ability to identify mutual goals and opportunities for collaboration is required

  • Broad knowledge of the biopharma industry; working knowledge of drug development, HEOR, access and reimbursement, and commercialization.

  • Superb communication skills, tact, composure, and confidentiality

  • Robust knowledge of current compliance, legal, regulatory and other issues that impact the biopharmaceutical industry and its protocol for patient engagement

  • Outstanding interpersonal skills, ability to successfully influence without authority, and work across functions and personalities

  • Demonstrated good judgment and ability to effectively prioritize workload

  • Entrepreneurial drive and ability to navigate and collaborate across matrixed enterprise

  • Impeccable personal character and high integrity

  • Ability to work well under pressure and enjoys a fast-paced, often unpredictable environment

  • This position may require up to 40 % overall travel, which may be inclusive of nights/weekends which will be occasionally required

This position is a North America-facing position.  Sanofi U.S. is only considering candidates who are currently legally eligible to work in the U.S.

Company-paid relocation benefits are not offered for this position

Preferred Qualifications

  • Experience engaging leaders of patient advocacy organizations within Rare Diseases is preferred

  • Experience with pre-launch advocacy strategy

  • Existing relationships with relevant advocacy thought leaders

  • Experience with expanded access issues is a plus

Sanofi Inc. and its U.S. affiliates are Equal Opportunity and Affirmative Action employers committed to a culturally diverse workforce. All qualified applicants will receive consideration for employment without regard to race; color; creed; religion; national origin; age; ancestry; nationality; marital, domestic partnership or civil union status; sex, gender, gender identity or expression; affectional or sexual orientation; disability; veteran or military status or liability for military status; domestic violence victim status; atypical cellular or blood trait; genetic information (including the refusal to submit to genetic testing) or any other characteristic protected by law. #GD-SG; #LI-GZ

At Sanofi diversity and inclusion is foundational to how we operate and embedded in our Core Values. We recognize to truly tap into the richness diversity brings we must lead with inclusion and have a workplace where those differences can thrive and be leveraged to empower the lives of our colleagues, patients and customers. We respect and celebrate the diversity of our people, their backgrounds and experiences and provide equal opportunity for all.

Job posted: 2021-03-11