Manager, Advocacy and Government Affairs

03 Aug, 2022


Manager, Advocacy and Government Affairs

Cystic Fibrosis Foundation (CF Foundation)
Bethesda, MD

The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization like no other. For decades, we have been taking major steps and pioneering new ways to find a cure for cystic fibrosis.

We are the global leader in the search for a cure for cystic fibrosis and nearly every CF drug and therapy available today was made possible because of CF Foundation support. We did this not only for the more than 30,000 people living in the U.S. with CF – and the estimated 70,000 people worldwide – but for the families who have worked tirelessly to find a cure for their loved ones living with CF.


These achievements have required dedication and unwavering commitment from a talented team of CF Foundation employees. We have created an environment that attracts — and retains — a diverse group of talented people who are passionate about changing the face of this disease. Join us and you will partner with colleagues of varying backgrounds and expertise, all united in our mission.


Job Description
The Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values.  These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

  • Keep sight of what really matters:  Our decisions are based on what is best for people with cystic fibrosis and their families.
  • Aspire for excellence in all we do:  We take pride in our work. We are committed to continuous learning and improvement.
  • Stronger together:  We collaborate and work together so that we can learn more and achieve more.
  • Innovate with courage:  We embrace challenges. We reach beyond boundaries in pursuit of our vision.
  • Care about our people:  We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.


We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease.  Nearly every CF medicine available today was made possible because of Foundation support.



The Manager serves as the Foundation’s lead lobbyist at the Federal level and plays a key strategic role in developing and advancing the Foundation’s federal legislative agenda to support the cystic fibrosis drug development pipeline and ensure people with CF have access to high-quality, specialized care. The Manager will track and analyze relevant legislation and regulations, help shape the Foundation’s policy positions on these issues, and serve at the lead advocate for CFF’s policy priorities on Capitol Hill, with federal agencies, and with third party organizations.




  • Serve as CFF’s lead lobbyist at the Federal level, representing the Foundation in meetings with members of Congress and their staff, with the administration, and with third party organizations.
  • Work closely with the Senior Director to develop the strategy and tactics for the Foundation’s Federal relations work. This includes creating quarterly lobbying plans, Congressional targets, and strategies to educate and influence key decisionmakers. It also entails serving as the main liaison with our contract lobbying firm to direct the work of our consultant(s).
  • Work across teams to coordinate, create and execute plans to advance CFF policy priorities and goals. Brief appropriate internal stakeholders to ensure alignment and understanding of key objectives. Key internal partners include the policy and communications teams.
  • Lead CFF’s external relations function by representing CFF in meetings with other stakeholder groups such as other patient advocacy organizations and formal and informal coalition meetings, playing a leadership role in coalitions CFF belongs to, and strategically developing relationships with new external partners.
  • Track, analyze, and develop CFF positions and responses to legislation (both authorizing and appropriations), regulations and guidance documents relevant to CFF’s public policy agenda.
  • Draft comment letters, correspondence to Congress, materials for Foundation leadership, testimony, and other documents that relate to CFF’s policy agenda.
  • Oversee development of materials such as handouts, slide presentations, talking points and policy summaries to introduce and explain the Foundation’s policy agenda to CFF volunteers; Collaborate closely with the communications team to develop external materials that support the Foundations strategic policy goals.
  • Play a key role in planning and executing grassroots advocacy events, including two annual fly-in days, meetings on Capitol Hill with members of CFF’s Board of Trustees, Hill briefings, and other events as needed. Responsibilities include targeting members of Congress to meet with, planning and executing training for advocates (online and in-person) and participating with volunteers and Board members in meetings with lawmakers and administration officials.
  • Develop and maintain relationships with members of Congress and staff who will champion CFF’s policy priorities. This includes working with the Bicameral, Bipartisan Congressional Cystic Fibrosis Caucus.
  • Attend and report on relevant Congressional hearings and briefings, agency meetings and workshops, and other events, and draft summaries for Foundation staff.
  • Directly manage one or two Coordinators, who support the team’s day to day work. Oversee the development, upkeep, and improvement of systems to track and organize the team’s work.
  • Other duties as they apply.



  • Bachelor’s degree, preferably with a background in public policy (health policy strongly preferred), public health, social sciences, political science, or biological sciences.
  • Minimum six years of relevant experience, including management experience and experience working on Capitol Hill, Executive branch agency, or in an advocacy position at an outside organization.
  • Demonstrated knowledge of legislative and political processes.
  • Previous experience in monitoring and analyzing public policy.
  • Ability to develop, build and manage relationships with members of Congress, staff, and other government officials; existing relationships preferred.
  • Excellent communication skills, both written and verbal.
  • Proficiency with Microsoft Office Suite – Word, PowerPoint, Excel, Outlook.



  • Reports to the Senior Director, Advocacy and Government Affairs.
  • Manages one or two coordinators.



  • Normal office environment with little exposure to excessive noise, dust and temperature.
  • No heavy lifting required.
  • Frequent local travel to attend meetings in Washington, DC.
  • Limited travel to conferences and meetings, as necessary.


The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities or requirements.



Total Rewards: The Cystic Fibrosis Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program; health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits; and a variety of work-life benefits to support employees and their family members.


The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.


Reasonable Accommodation: The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at

Learn more here

Job posted: 2022-08-03