Specialist, Policy & Advocacy

20 Jul, 2021


Specialist, Policy & Advocacy

Cystic Fibrosis Foundation (CF Foundation)
Bethesda, MD

The Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families.
Aspire for excellence in all we do: We take pride in our work. We are committed to continuous learning and improvement.
Stronger together: We collaborate and work together so that we can learn more and achieve more.
Innovate with courage: We embrace challenges. We reach beyond boundaries in pursuit of our vision.
Care about our people: We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.
We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. Nearly every CF medicine available today was made possible because of Foundation support.

Interested candidates should submit a resume and cover letter under “Resume and Cover Letter Attachment” within the CFF online application.


The Advocacy Specialist will execute campaigns that support the Foundation’s efforts to ensure that all people living with CF have access to the health care and coverage they need to stay healthy. Advocacy Specialists work in close collaboration with other members of the Advocacy & Government Affairs team to implement on-the-ground campaign activities, including management of volunteers, local coalitions of representatives from national stakeholders, planning and execution of events, and coordinating earned media opportunities. In partnership with State Policy Specialists and across departments, Advocacy Specialists help to develop strategy, tactics and approach to both federal and state policy advocacy activities, assisting in the development and distribution of communications materials, and tracking key programmatic metrics.


Work to build grassroots volunteer capacity to strengthen Foundation policy advocacy efforts, acting as CF community organizer; recommend appropriate tactics necessary to advance Foundation position in states (i.e. campaigns; op-eds; in-person meetings) and ensure proper execution of each tactical approach.
Serve as the conduit of information between policy team, communications, and chapter staff and volunteers.
Manage relationships including external consultants/lobbyists to identify opportunities for and execute engagement with state legislators. Work to identify local organizations to engage in advocacy efforts; establish relationships (internally and externally) and coordinate with key partners, including but not limited to local representatives of national patients’ organizations.
Plan and execute grassroots advocacy events including, but not limited to State Advocacy Days. This will include event recruitment, developing policy agenda, identifying legislators and other meeting targets, coordinating with local consultants, and providing event support.
Collaborate with chapter staff to execute events and programs that support volunteer engagement, management, and capacity-building initiatives.
Other duties as they apply.


Bachelor’s degree required.
Minimum 4 years of experience in fast-paced work environment, with prior experience in public policy, state legislature or political campaign highly preferred; relevant experience may be substituted for advanced degree.
Demonstrated knowledge of legislative and political processes.
Familiarity with Phone2Action, Salsa, NGP VAN, or similar mobilization software preferred.
Excellent writing, verbal and interpersonal skills, with ability to cultivate and strengthen relationships with internal and external stakeholders.
Ability to handle multiple projects in a fast-paced environment.
Team player with positive attitude and strong work ethic.


Reports to the Senior Manager, Policy & Advocacy.
No direct reports.


Normal office environment with little exposure to excessive noise, dust, and temperature.
No heavy lifting required. Minimal travel (e.g., 2x/yr.) to conferences and meetings, as necessary.

The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities or requirements.

Total Rewards
The Cystic Fibrosis Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program; health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits; and a variety of work-life benefits to support employees and their family members.

The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.

Reasonable Accommodation Notice

The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at HROps@cff.org .

Learn more here

Job posted: 2021-07-20