Policy & Advocacy Specialist

Position Description

The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization dedicated to finding a cure for cystic fibrosis and providing all people with CF the opportunity to lead fulfilling lives. We fund research, drug development, and advance specialized care.

We are the global leader in the search for a cure for cystic fibrosis, with nearly every CF drug available today made possible because of CF Foundation support.

Our Mission and Values

Mission: We are committed to finding a cure for cystic fibrosis.

Core Values:

• Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families.
• Aspire for excellence in all we do: We are committed to continuous learning and improvement.
• Stronger together: We collaborate and work together to achieve more.
• Innovate with courage: We embrace challenges and pursue our vision boldly.
• Care about our people: We deeply care about each other and all who support our mission.

Position Summary

The Advocacy Specialist executes campaigns supporting the Foundation’s efforts to ensure that all people with CF have access to healthcare. Responsibilities include grassroots organizing, event planning, drafting advocacy materials, and collaborating with stakeholders.

Essential Duties and Responsibilities

• Build grassroots volunteer capacity for policy advocacy efforts.
• Recruit, vet, and train volunteer advocacy leaders.
• Draft advocacy materials and action alerts.
• Plan and execute grassroots advocacy events.
• Serve as a liaison between policy team, communications, and volunteers.

Knowledge, Skills, and Abilities Required

• Bachelor’s degree required.
• Minimum four years of experience in a fast-paced environment.
• Demonstrated knowledge of legislative and political processes.
• Familiarity with mobilization software preferred.
• Excellent writing, verbal, and interpersonal skills.
• Ability to handle multiple projects in a fast-paced environment.
• Positive attitude and strong work ethic.

Reporting Relationships

Reports to the Senior Manager, Policy & Advocacy. No direct reports.

Working Conditions

• Normal office environment with minimal travel.
• No heavy lifting required.

Total Rewards

We offer competitive compensation, benefits, and professional development opportunities to recruit and retain a diverse workforce.

Equal Opportunity Employer

We are committed to being an inclusive workplace. Qualified applicants will receive consideration for employment without regard to race, disability, religion, age, sex, or any other characteristic protected by law.

Reasonable Accommodations

We provide reasonable accommodations for qualified individuals with disabilities in our job application procedures. Contact us at [email protected] for assistance.

Learn more here