Advocacy and Public Policy Manager
The Epilepsy Foundation of Minnesota (EFMN) is a mission-driven organization working to educate, connect, and
empower people about issues surrounding epilepsy and seizures. Our vision is a world in which people living with
seizures realize their full potential. In order to make that vision a reality, our dedicated staff provide a wide range of
programs and services for people with seizures, their families, and the wider community.
On a practical level, this can mean delivering trainings to teachers and school nurses who have a child with epilepsy in
their care; facilitating support groups for adults living with epilepsy; running a summer camp for children who might not
otherwise be able to attend one; offering no cost seizure first aid trainings; designing awareness campaigns to educate
the general public about epilepsy and fighting the stigma surrounding seizures; coordinating events to bring together
people impacted by epilepsy; sharing community resources through our Information Services hotline; advocating for
those living with epilepsy and so much more. Last year we touched the lives of over 170,000 constituents with our
programs, events, and outreach efforts.
EFMN offers a vibrant and team-driven atmosphere with a strong commitment to our community and to our mission.
Our team is currently working virtually with the option to voluntarily work from the office.
For more information about EFMN, please visit our website, check out our pages on Facebook and Linked In, or read our
2019 Annual Report.
The Advocacy and Public Policy Manager is part of the Mission Outcomes division which includes mission-directed
efforts including education, information services, support services, connection opportunities, advocacy and public policy,
and diversity, equity and inclusion. The manager works with the Associate Executive Director of Mission and Strategy to
identify and develop the Epilepsy Foundation of Minnesota’s policy priorities and collaborates with the full Mission
Outcomes team and relevant committees to gain awareness of the barriers that individuals impacted by epilepsy face,
and to understand mission delivery successes, impacts, and challenges. The manager works to advance public policy
priorities with the state legislature and local jurisdictions and is responsible for building and sustaining an advocate
Advocacy and Policy Planning and Development
Create and execute a comprehensive advocacy strategy, plan and budget that align with EFMN’s strategic plan,
fulfill our mission, and advance diversity, equity and inclusion.
Establish metrics for success, monitor efforts and evaluate progress toward yearly advocacy goals that align with
overall Mission Outcomes goals.
Stay abreast of access to care, disability rights and legal advocacy, funding for epilepsy, research and innovation,
and other advocacy or policy areas that impact the epilepsy community.
Work with the Associate Executive Director of Mission and Strategy to set an annual public policy agenda,
striving to improve access to affordable, comprehensive, physician-directed health care, ensures disability rights
and otherwise supports the epilepsy community.
Create and manage systems to track information about key issues and policymakers.
Work with the Epilepsy Foundation national advocacy staff to draft testimony, position papers, and public
comment letters on public policy issues.
Plan and execute annual Epilepsy Day at the Capitol during the legislative session.
Attend the annual Teens Speak Up and Public Policy Institute in Washington D.C. along with one Minnesota teen
and a guardian.
Recruit and develop a relationship portfolio of volunteers that advise state advocacy strategy, advance legislation,
influence policy makers and testify at hearings and committee meetings.
Develop and organize all aspects of grassroots and grasstops advocacy and advocate support/mobilization efforts.
Build an advocate network that increases EFMN’s advocacy capacity considering demographics, political
relationships and issues expertise.
Identify and develop volunteers with personal stories related to EFMN’s policy campaigns.
Conduct trainings as needed for volunteers and EFMN staff, and prepare volunteers and staff for interactions with
elected officials and their staff.
Collaborate with the full Mission Outcomes team to build a portfolio of stories and experiences relevant to advocacy
issues and to identify potential advocacy volunteers.
Use digital technology tools and social media to develop and improve upon systems for creating direct action
campaigns and mobilizing advocates around an issue.
Partner with Epilepsy Foundation national advocacy team to use national’s digital advocacy software to connect
advocates with federal lawmakers.
Activate new and existing epilepsy advocates to ensure a strong turnout at the annual Epilepsy Day at the Capitol.
Relationships and Communications
Work with the Marketing team to maintain an advocacy web page and set a social media schedule for advocacy and
public policy posts.
Build and maintain relationships with external stakeholders, community partners and coalitions throughout the
service area to build capacity and advance policy goals.
Participate in coalitions, councils, committees, and associations that are relevant to and advance EFMN’s mission.
Build and maintain relationships with elected officials, their representatives and staff, as well as the Governor’s
Office and state agency staff, both directly and through volunteers.
Collaborate with the Epilepsy Foundation advocacy team and other chapters and affiliates in the network to advance
Position EFMN to be a resource on issues related to health, disability, and other key areas related to EFMN’s mission.
Bachelor’s degree and one year of relevant experience, or equivalent combination, preferred.
Demonstrated commitment to racial equity, social justice and health equity.
Demonstrated ability to work on fast-paced, time-sensitive matters.
Proficient in Microsoft Office Suite and electronic communication platforms such as Zoom.
Demonstrated ability to work with individuals of varying abilities and from diverse backgrounds.
Ability to work a flexible schedule including evenings and weekends.
Compensation and Benefits:
We offer a competitive, comprehensive total compensation package. The salary range is $48,500-52,500 annually. A
core benefits package includes short- and long-term disability and life insurance with related premiums covered 100% by
EFMN. Additional options include medical (HDHP and copay plan options) and dental insurance with EFMN covering 85%
of related premiums for employee coverage. Ongoing professional development opportunities are available to all office
staff and our time off package includes PTO and holiday pay.
How to apply:
Qualified candidates should submit a cover letter and resume all in one document (PDF preferred) to Heather Besonen
at email@example.com. Candidate materials will be accepted through November 8, 2020.
Job posted: 2020-10-26