Manager, Policy & Advocacy

26 Oct, 2021


Manager, Policy & Advocacy

Cystic Fibrosis Foundation (CF Foundation)
Bethesda, MD

The Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families.
Aspire for excellence in all we do: We take pride in our work. We are committed to continuous learning and improvement.
Stronger together: We collaborate and work together so that we can learn more and achieve more.
Innovate with courage: We embrace challenges. We reach beyond boundaries in pursuit of our vision.
Care about our people: We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.

We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. Nearly every CF medicine available today was made possible because of Foundation support.

Interested candidates should submit a resume and cover letter under “Resume and Cover Letter Attachment” within the CFF online application.


This position manages the Foundation’s federal policy portfolio for issues related to basic research and drug discovery and development. Specifically, the federal policy manager will serve as the Foundation’s lead analyst on policies related to basic research and therapeutic discovery, development, and approval, as well as a range of additional issues. This portfolio includes legislative and regulatory policies and requires close collaboration with the Foundation’s scientific and therapeutics development teams.


Manages federal policy analysis and advocacy related to basic research and therapeutic discovery, development, and approval.
Analyzes legislation, regulations, and guidance documents to determine implications for the CF research and drug development agenda.
Develops legislative/regulatory comments and issues campaign materials, including letters, web content, talking points, and additional documents to further the Foundation’s research and drug development policy agenda.
Maintains in-depth knowledge of CF research and drug development, clinical trial design concerns, and rare disease research.
Serves as a subject matter expert on a variety of health and science policy issues, including policies relating to the Food and Drug Administration, National Institutes of Health (NIH), and Centers for Disease Control and Prevention, as well as issues related to biomedical research, drug development, antibiotic resistance, and lung transplantation.
Cultivates relationships with key internal and external stakeholders, including the research and clinical trials teams, to facilitate effective collaboration in developing research and drug development policy positions.
Tracks and analyzes research, drug discovery, and development trends, and key advancements in the field, with particular focus on clinical trial design.
Monitors NIH and relevant Institutes funding priorities; develops and implements strategies to advance CF research goals within NIH.
Represents CFF on Capitol Hill, in meetings with federal agencies, and in meetings with other stakeholders about research and drug development and other public health issues.
Coordinates with federal & state policy, grassroots advocacy, government affairs, patient assistance, and communications colleagues to ensure alignment across policy priorities and campaigns.
Other duties as they apply.


Bachelor’s degree, in public policy, public health, social sciences, political science, or biological sciences. Master’s degree a plus.
Minimum of 6 years of relevant experience.
Scientific background with previous experience in monitoring and analyzing science and/or drug development or public policy.
Demonstrated knowledge of legislative, regulatory, and political processes.
Excellent communication skills, both written and verbal.
Proficiency with Microsoft Office Suite – Word, PowerPoint, Excel, Outlook.


Reports to the Senior Director, Policy and Advocacy. No direct reports.


Normal office environment with little exposure to excessive noise, dust and temperature.
No heavy lifting required.
Limited travel to conferences and meetings, as necessary.

The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities or requirements.

Total Rewards
The Cystic Fibrosis Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program; health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits; and a variety of work-life benefits to support employees and their family members.

The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.

Reasonable Accommodation Notice

The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at

Learn more here

Job posted: 2021-10-26