Leukemia & Lymphoma Society (LLS)
Washington, DC


The Senior Director, Advocacy serves as the strategic leader for an active network of grassroots and grass-top advocates, volunteers, patients and organizational partners. The position leads the ongoing development of a nationwide groundswell of supporters of the LLS mission.  This position leads a team of Advocacy Managers/Directors in order to increase the breadth and depth of engagement with grassroots and grass-tops advocacy volunteers around the U.S.

Reporting to the Vice President, Office of Public Policy, the Senior Director, Advocacy oversees the advocacy team’s ongoing development, training, and managing of strong advocacy networks within four regions of the country.  Working closely with Government Affairs staff and the Patient Access team, Advocacy will help to drive local involvement in activities supporting policies that remove access barriers to care.

The Senior Director oversees an extensive volunteer advocacy structure, including the state-based advocacy committees, state and chapter based volunteer Advocacy captains, advocacy ambassadors, and regional councils.  Developing volunteers will also involve significant collaboration with LLS Campaign staff to ensure integration and efficiency of lead-sharing and opportunity cultivation.


  • Develops and oversees the implementation of regional, volunteer-based advocacy networks.
  • Drives cross functionally alignment with leadership in chapters and across the organization.
  • Works closely with key volunteers, ensuring that we are keeping them involved in the process and connected with our mission.
  • Ensures that our advocacy efforts support the LLS policy strategy.
  • Manages a staff of 5 Advocacy Managers/Directors.
  • Works with staff to develop annual priorities and goals, implement and execute on the annual priorities and schedule a calendar of activities to support such a plan
  • Leads LLS efforts to create a nationwide volunteer advocacy campaign that will be at the center of our mission to provide sustainable patient access.
  • Develops annual budget to support function and ensures utilization meets budget goals are met.
  • Writes grant proposals to secure external funding, as needed.
  • Develops external advocacy partnerships with organizations with similar goals and missions to magnify and multiply effectiveness of advocacy campaigns
  • Works with Government Affairs to identify opportunities for advocacy engagement or communication on key policy issues.  Works with advocacy team to identify individuals who can share their stories as appropriate with key policy decision makers, media, etc
  • Oversees recruitment, engagement, and training of volunteers for continued involvement in local, state and federal field and mission activities.
  • In coordination with the National Office and Regional Mission and Field Communications staff, works with advocacy team to engage media outlets to promote LLS services and to ensure that advocate stories are captured and shared.
  • Collaborates cross-functionally to ensure execution of mission goals.


  • Bachelor’s degree (Masters preferred) with significant (5-7 years) experience in patient and volunteer advocacy, grassroots organization functions, and preferably, public or private sector state lobbying.
  • Demonstrated success in creating, developing and successfully managing a team of experienced advocacy professionals.
  • Demonstrated exemplary team leadership
  • Be able to delegate authority and responsibility to members of a team.
  • Proven ability to identify, recruit, and develop strong working relationships with patients, and volunteers.
  • Ability to develop collaborative relationships with internal and external stakeholders.
  • Strong communication skills, both oral and written/
  • Ability to work independently, thrive under pressure, and simultaneously move multiple tasks forward at high level.
  • Strong problem-solving, priority-setting, public speaking and decision-making skills.
  • Flexibility to travel as needed.
  • Some knowledge and experience in healthcare policy issues.
  • Able to think holistically about organizational needs.
  • Experience working collaboratively, across multiple functions within an organization and execution of goals with enterprise level impact.


The statements herein are intended to describe the general nature and level of work being performed by employees, and are not to be construed as an exhaustive list of responsibilities, duties, and skills required of employees. Furthermore, they do not establish a contract for employment and are subject to change at the discretion of the Company. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions. The Leukemia & Lymphoma Society (LLS) does not accept resumes from third party recruitment/search firms. Please do not forward resumes to LLS employees or any company locations or email addresses. LLS is not responsible for any fees related to resumes not solicited by LLS Recruiting. The Leukemia & Lymphoma Society (LLS) is an Equal Opportunity Employer.



Job Posted: March 14, 2017