Advocacy & Stakeholder Engagement Manager

## **Sick Cells – Advocacy and Stakeholder Engagement Manager**

Sick Cells is hiring an **Advocacy and Stakeholder Engagement Manager** to join its team. Sick Cells is a nonprofit advocacy organization working to improve the lives of individuals and families affected by sickle cell disease (SCD) through community engagement, policy action, education, and systems change.

The Advocacy and Stakeholder Engagement Manager will lead community engagement efforts related to Medicaid and payer engagement. This role will oversee the development, coordination, and dissemination of insights from Medicaid consumer panels, decision‑making boards, and public meetings. This position reports to the Senior Director of Policy and Government Affairs.

This is a full‑time, hybrid position, with two days per week spent in the Washington, D.C. office. Occasional travel, weekend, and evening work will be required.

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## **Essential Duties and Responsibilities**

– **Stakeholder relationships** — Build and maintain strong relationships with stakeholders, including state Medicaid agencies, healthcare providers, community organizations, and payers.
– **Medicaid–payer collaboration** — Strengthen collaboration between Medicaid programs and payers to improve access to innovative SCD therapies.
– **Representation at meetings** — Represent Sick Cells at consumer‑facing meetings, including Prescription Drug Affordability Boards.
– **Ambassador coordination** — Recruit, train, and coordinate patient ambassadors for DURB Board testimony.
– **Medicaid policy tracking** — Manage and maintain the national 50‑State Medicaid Legislative & Policy Landscape, including DURB calendars, decisions, and SCD therapeutic reviews.
– **Briefing materials** — Develop high‑quality briefing materials, talking points, and state‑specific policy summaries.
– **Congressional briefings** — Support Congressional briefings and prepare ambassadors for participation.
– **Event planning** — Assist in planning and executing policy events and advocacy initiatives.
– **Federal policy support** — Assist with federal policy priorities as needed.
– **Internal tracking** — Maintain internal tracking systems, dashboards, and reporting tools to support strategic decision‑making.
– **Educational materials** — Create educational materials and resources for diverse audiences.
– **Content development** — Draft content including blogs, presentations, white papers, newsletters, and social media.
– **Contractor coordination** — Coordinate with external contractors to ensure accurate and up‑to‑date Medicaid coverage intelligence.
– **Other duties as assigned.**

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## **Qualifications**

– Bachelor’s degree and **3–5 years** of relevant work experience.
– Experience or familiarity with **patient advocacy** and **state healthcare policy**.
– Understanding of **Medicaid**, **prior authorization**, and **DUR processes**.
– Excellent written and verbal communication skills, with the ability to tailor messaging to diverse audiences.
– Highly organized with the ability to manage multiple priorities and deadlines.
– Demonstrated experience writing across formats, including reports, presentations, and plain‑language summaries.

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## **Benefits**

This is a full‑time, direct‑hire position.
Salary range: **$65,000–$70,000**, commensurate with experience.

Benefits include:
– Health, vision, and dental insurance
– 403(b) with 1% match
– Professional development
– Generous paid leave

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## **How to Apply**

To apply, please send a current **resume** and **writing sample** to **[email protected]**, with **“Advocacy and Stakeholder Engagement”** in the subject line.

Applications will be accepted on a rolling basis until the position is filled.